Useful links

Australian Pancreatic Cancer Genome Initiative

The Australian Pancreatic Cancer Genome Initiative (APGI) is part of the International Cancer Genome Consortium, a worldwide collaborative effort to catalogue the genomic and epigenomic abnormalities in the top 50 Cancers. Each country is addressing a different cancer with Australia focusing on pancreatic cancer. Our funding for the Garvan Institute contributes towards this hugely important Initiative.

Find out more at:


The Lustgarten Foundation (USA)

The Lustgarten Foundation supports pancreatic cancer research to advance the science and medicine related to this disease. It provides accurate, free information to patients and caregivers.

Find out more at the Lustgarten Foundation site.



Canrefer is an online service of the Cancer Institute NSW with a free NSW and ACT cancer directory. Users can search by location or cancer type (select Upper Gastrointestinal for pancreatic cancer) for up-to-date information on:

  • Cancer specialists attached to a multidisciplinary team
  • Service opening hours, maps, parking details
  • Cancer services

Find out more at the Canrefer site.


Nursing service for pancreatic cancer patients and their families

The Centre for Community-Driven Research have a free nursing service for pancreatic cancer patients and their families. They allow you to book in a time with a nurse, who will help you navigate the services available and make sure that you have a good care plan in place. It is a phone service and is available to anyone with pancreatic cancer or their family in Australia.

Find out more by calling 1300 42 68 77.


Genetic testing clinics

Family cancer clinics can provide information and an assessment of your family history of cancer, specifically:

  • A personalised level of cancer risk
  • Recommendations regarding how people can manage any increased cancer risk
  • Understanding how a hereditary gene may be involved in influencing their family history with cancer.

More information about family genetics and cancer can be found on Cancer Council's website or via the Australian Pancreatic Cancer Genome Initiative.

A list of Cancer Genetics Clinics around Australia can be found here.


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