Privacy Policy

The Australian Pancreatic Cancer Foundation (PanKind, we, us or our) (ABN 22 145 513 060) is committed to protecting your privacy. Your privacy is of paramount concern to us because we appreciate and value our supporters. This Privacy Policy sets out our practices in relation to the collection, use, storage and disclosure of personal information.

We are bound by the Privacy Act 1988 (Cth) (the Privacy Act) which includes the Australian Privacy Principles.

By providing personal information to us, you consent to our collection, use and disclosure of that personal information on the terms of this Privacy Policy and any other contractual or other arrangements that apply between us (if any).

To ensure continuing compliance with the Privacy Act, we may modify or update this Privacy Policy from time to time by publishing an updated version of it on this website. We encourage you to check our website periodically to ensure that you are aware of our current Privacy Policy.

Types of personal information we collect

We collect personal information from you that is necessary for us to perform our services, functions or activities. Personal information includes any information or an opinion about an identified individual, or an individual that is reasonably identifiable, notwithstanding whether or not that information or opinion is true or is recorded in a material form. If you do not provide this information, we may not be able to provide some or all of our services to you.

We may collect the following types of personal information:

• name;
• telephone number;
• address;
• email address;
• age or month and/or year of birth;
• your device ID, device type, geo-location information, computer and connection information, statistics on page views, traffic to and from our website, ad data, IP address and standard web log information;
• details of the services we have provided to you or that you have enquired about, including any additional information necessary to deliver those services and respond to your enquiries;
• any additional information relating to you that you provide to us directly through our website or indirectly through your use of our website or online presence or through other websites or accounts from which you permit us to collect information;
• information you provide to us through surveys; and
  your photographs, image, or video or audio recording obtained at our events that you have attended.

We will only collect sensitive information about you with your consent. Sensitive information is a special category of personal information that includes health and genetic information, information about an individual's race or ethnic origin, political opinions or associations, religious or philosophical beliefs, trade union membership or associations, criminal record, and biometric information.

When you apply for a position with us we may collect the following information which may contain sensitive information:

• employment/volunteering/working history;
• professional or trade associations; and
• criminal records.

When you use our Family History Checker tool, we may collect anonymously the following sensitive information:

• health information about you or your family members; and
• genetic information about you or your family members that is not otherwise health information.

If you provide us with personal information about another person, please make sure that you tell them about this Privacy Policy. 

Why we collect personal information

We rely on financial support from the public to provide funding for cancer research and to provide support, awareness and advocacy services to patients and carers.
We may collect, hold, use and disclose your personal information for the following purposes:

• to communicate with you about our organisation, our activities, and our services;
• to provide information requested by you;
• to enable you to access and use our website and online services, including applications for funding, the Family History Checker Tool and the Remember September App;
• to operate, protect, improve and optimise our website, services, business and your experience, such as to perform analytics, conduct research and for advertising and marketing;
• to let you know the ways in which you may support us or make a donation;
• to raise funds;
• to carry out fundraising and awareness activities;
• to provide you with a tax receipt at tax time;
• for our general business operations;
• to enable you to apply for a position (as a volunteer or employee) with us; and
• to comply with our legal obligations.

Direct marketing

If your contact details appear on our donor or fundraising databases, we may use your personal information to send you information about Pankind that may be of interest to you. Our communications may take the form of emails, SMS, mail or other forms of communication, and will comply with requirements of the Spam Act 2003 (Cth), the Do Not Call Register and the Privacy Act. 

If you do not wish to receive this information you can opt-out at any time by contacting us using the information at the end of this Privacy Policy or by using the opt-out facilities provided in our communications (such as an unsubscribe link).

How we collect personal information

We collect personal information in many different ways, including from you directly and from third parties. We collect information when you interact with us, including through sources such as in-memoriam donation envelopes, appeal responses, funding applications and from those who send in a donation with their personal details.

We collect sensitive information from you through your use of the Family History Checker tool for the purposes of assessing your inherited risk of developing pancreatic cancer. 

To whom we disclose your personal information

We may disclose your personal information to third parties for the purposes described in this Privacy Policy, and this may include disclosures to:

• our employees and volunteers;
• third party suppliers and their employees, contractors and agents, such as other organisations who we engage to support our services or activities, in particular: website infrastructure and hosting services, data storage and archiving services, website analytics, performance monitoring and reporting, distribution of service updates, administration of user experience surveys, and IT support services;
• specific third parties authorised by you to receive information held by us, including professional payment systems operators (including merchants receiving card payments);
• professional advisers, dealers and agents; and
• government agencies, regulatory bodies and law enforcement agencies, or as required, authorised or permitted by law.

The disclosures referred to above may include disclosure to third parties to the extent necessary for them to perform their duties to us. Apart from the disclosures listed above, PanKind does not licence, sell or otherwise share its donor information with any other organisation under any circumstances, unless otherwise notified to you.

Disclosure of personal information outside Australia

We may disclose personal information outside of Australia:

• in order to store or support storage so that we can provide continuity of service to you;
• in order to support the services we provide through our service providers who may be located outside Australia; and
• where we are legally required to do so.

Security of your personal information

We may hold your personal information in either electronic or paper form. We regard the security of your personal information as a priority and take reasonable steps to protect your personal information from misuse, interference and loss, as well as unauthorised access, modification or disclosure, and we use several physical, administrative, personnel and technical measures to protect your personal information. These measures include:

• taking appropriate security measures to protect electronic materials (for example, by using end-to-end encryption or multi-factor authentication) and paper materials and requiring our service providers to do the same under service contracts and confidentiality agreements.
• engaging with service providers that demonstrate compliance with international regulations on cyber security.
• ensuring only people who need to use your personal information have access to it, and that our staff, volunteers and contractors understand how to use personal information responsibly and keep it safe.
• taking reasonable steps to destroy or de-identify personal information when we no longer need it; and
• Implementing policies and procedures for any destruction or damage to data in the event of a failure or disaster (including backup and recovery processes).

We remind you, however, that the internet is not a secure environment and although all care is taken, we cannot guarantee the security of information you provide to us via electronic means.

Cookies

We may collect personal information about you through the use of cookies when you access and use our websites. Cookies assist us to track patterns and visitor usage of our websites (including which parts of the website you visit, the time and date of your visit and the internet protocol address assigned to your computer), which we use for the purposes of providing improved service and content based on aggregate or statistical review of user site traffic patterns and retargeting.

Facebook retargeting allows us to show personalised advertisements to users who have previously visited our website. This helps us to provide relevant content and offers that may interest you.
How We Use Facebook Retargeting:

• Data Collection: We use cookies and similar technologies to collect information about your interactions with our website. This data includes pages visited, time spent on the site, and actions taken.
• Ad Personalisation: The collected data is used to create customized advertisements that are displayed on Facebook and its partner networks.
• Data Sharing: We share this data with Facebook to facilitate the retargeting process. Facebook may use this data in accordance with its own privacy policies.

If for any reason you wish not to take advantage of cookies, you may have your browser not accept them, although this may disable or render unusable some of the features of our website. You can opt-out of Facebook retargeting by adjusting your ad preferences on Facebook or by using tools such as the Digital Advertising Alliance’s opt-out mechanism.

Links

Our websites may contain links to websites operated by third parties. Those links are provided for convenience and may not remain current or be maintained. Unless expressly stated otherwise, we are not responsible for the privacy practices of, or any content on, those linked websites and have no control over or rights in those linked websites. The privacy policies that apply to those other websites may differ substantially from our Privacy Policy, so we encourage you to read them before using those websites.

Remember September App Privacy Practices

The Remember September app, developed in collaboration with our trusted partners Funraisin and Made with Ed, supports our fundraising and awareness efforts. This app collects certain information to improve functionality, support user engagement, and enhance your experience. It may send push notifications to provide important updates and reminders. The app uses background location tracking to monitor start and end points of activity sessions, with this data visible only to the individual user. It may also collect activity and health-related data—such as distance, time, steps, calories burned, and wheelchair pushes—when connected with HealthKit or similar services. Non-personal information is collected to support app performance improvements. While users can update their name within the app, all other personal details are managed through our website. For transparency and security, your data is handled with care and in accordance with Australian privacy legislation and our Privacy Policy.

Accessing, correcting or deleting your personal information

You have the right to access, correct and delete the personal information we hold about you. We will generally provide you with access to your personal information (subject to some exceptions permitted by law) but may charge an access fee to cover the cost of retrieving the information and supplying it to you. 

If you would like access to the information we hold about you, if your details change or if you believe that your personal information held by us is inaccurate or out of date, please contact us on the contact details at the end of this Privacy Policy. Where you request access to your personal information, we will need to verify your identity, for example by asking you to confirm your name, address and date of birth.

If your request is about deletion, once verified, your data will be permanently deleted from our systems unless we are legally required to retain certain information.

Making a complaint

You may make a complaint about our handling of your personal information, including if you think we have breached the Privacy Act, by contacting our Privacy Officer on the details set out at the end of this Privacy Policy. We will inquire into your complaint and respond to you in writing within 30 days. If you are not satisfied with our response, you can lodge a complaint with the Office of the Australian Information Commissioner (www.oaic.gov.au).

Last updated: 17/07/2025